Sense is a specialist service for children and young people with multi-sensory impairments. Sense aim to make sure that no one with complex communication needs is isolated, left out or unable to fulfill their potential.
The Guide Dogs’ grant service considers funding for technology and sensory items for blind and visually impaired children and young people aged 18 and under, including iPads, portable magnifiers and sensory kits.
They also have a service called Children and Young People’s Services which offers support, both emotional and practical through the diagnosis process and beyond including DLA/PIP applications.
Their CustomEyes service prints large print books at cost price for children with vision impairment. They current have more than 4,000 titles and are updating all the time.
Guide Dogs offers a range of services to children and young people with a vision impairment and their families:
SWAN UK is an initiative of the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.
National charity which provides vital information and support services for individuals and families affected by Retinitis Pigmentosa (RP), related syndromes and other retinal dystrophies.
The Royal Blind Society provides support to give blind children and their parents the confidence to live beyond their sight condition. The Family Support Service supports young people aged 0-25 years who have been diagnosed with a serious eye condition and their family.
In England RNIB works with Action for Blind People to offer help and support for anyone affected by sight loss. Support includes: recently diagnosed, children & family services, young people’s services & activities calendar.
The leading patient information, support and scientific research charity for Nystagmus in Europe. Provides support and information to families affected by the condition.
Information about Microanophthalmia, Anophthalmia, Coloboma and related conditions. MACS offer support and information to parents and professionals in the UK and around the world. Macs also give parents, families and children the opportunity to meet each other, support each other and learn from each other.
A UK-wide charity providing advice, information and support to the parents of all disabled children – no matter what their health condition. They also enable parents to get in contact with other families, both on a local and national basis.